Our Mission


To spread awareness about Sanfilippo Syndrome, to help find a CURE for all the children and young adults who suffer from this devastating disease.

Join us in finding a cure

Sanfilippo is a rare genetic disorder. At this time there is NO TREATMENT or NO CURE! Causes my body and brain to decline. Causes problems with my joints, heart, respiratory system & speech. Will loose the ability to walk & talk as the disease progresses. This disease will likely end my life before I am 20 years old, unless a CURE can be found!!

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