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     Our Mission

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To spread awareness about Sanfilippo Syndrome, to help find a CURE for all the children and young adults who suffer from this devastating disease..

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Sanfilippo is a rare genetic disorder. At this time there is NO TREATMENT or NO CURE! Causes my body and brain to decline. Causes problems with my joints, heart, respiratory system & speech. Will loose the ability to walk & talk as the disease progresses. Doctors say I would live into my teens, but now I am living on borrrowed time!

I NEED A CURE!

CURE


​​​ Levi's Life, Love & Laughter

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