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Sanfilippo is a rare genetic disorder. At this time there is NO TREATMENT or NO CURE! Causes my body and brain to decline. Causes problems with my joints, heart, respiratory system & speech. Will loose the ability to walk & talk as the disease progresses. Doctors say I wouldn't live into my teens, but now I am 23 but living on borrrowed time!
I NEED A CURE!
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CURE
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