We are excited to announce Levi’s Life, Love & Laughter’s 6th annual golf outing,“Tee Off For A Cure”
The proceeds will be benefiting Cure Sanfilippo Foundation Inc. in honor of Levi Ormeroid. Tax ID # 46-4322131
Levi was diagnosed with Sanfilippo Syndrome / MPSIII type C in 2009, at the age of 10 years old. Sanfilippo Syndrome is a rare, genetic disease with a life expectancy between 10-20 years old. It’s like Alzheimer's, but in children. It’s 100% fatal and currently there is no FDA
approved treatment or cure. Over time, children experience a neurological decline and lose their ability to walk, talk and eat on their own. It causes problems with speech, respiratory system, organs & joints.
Our mission in life is to spread awareness by sharing Levi's story as he battles this debilitating disease. We want to find a treatment for Levi and others affected by this rare disease. Levi is a happy 22-year-old who loves life. He is such a blessing to our lives and is a true "HERO”. He has a smile that will melt your heart and a laugh you will never forget. The thought of watching him decline anymore than he already has will be heartbreaking for us. So much of his abilities have been stolen from this disease! We are not giving up this fight for Levi and we HOPE you too will help keep fighting alongside us until we find a treatment or better yet a CURE for Levi and all of his dear to us friends that suffer from the same rare disease.
This year’s golf outing will be held on Saturday, August 7th at New Berlin Hills Golf Course at 1:00pm.
We need your help with sponsorships and donations. We would like to see you take advantage of the opportunity while supporting a great cause.
Hole Sponsorship ($200.00 ) (18 available) Includes: Sign on green with company name/ logo. Note: Golfer Fee not included with Hole Sponsor
Corporate Sponsor ($2000) Includes: 4 Golfers ($500 value) - Sponsor Sign at registration & practice green - Social Media posts and links- Logo on Thank you Card - Logo on all flyers, online forms during promotion of event Company mention in any press releases and media coverage - Thank you mention by host during speech
Beverage/Beer Cart Sponsor ($1000) (2 available) Includes: 2 Golfers ($250 value) - Sign on Beverage Cart and included on Sponsor Sign at registration - Social Media posts - Logo on Thank you Card Thank you mention by host during speech
T-Shirt Sponsor ($500) Sponsor Sign at registration – Social Media posts-Logo on Thank you Cards - Thank you mention by host during speech. Note: Golfer Fee not included with T-Shirt Sponsor
This is a great way to get your company information out there. Please feel free to contact us with any questions you have about this event!
We appreciate any door prizes, raffle, silent auction items or cash donations.
We look forward to working with everyone to make Levi’s Life, Love & Laughter’s 6th Annual “Tee Off For A Cure” a Huge Success!
Thank you for your support.
More information can be found here regarding the golf event:
I would do just about anything for someone that I love, which includes climbing 18,491 feet up a mountain. I’m not just climbing this mountain
for the mind-blowing adventure; I am climbing this mountain to prove that
NO mountain is too high when it comes to saving my brothers life from Sanfilippo Syndrome. Sanfilippo Syndrome is a monstrous disease that slowly takes away an individuals ability to function in many ways. This mountain is a symbol of what we are up against; this debilitating disease, and now we are fighting to find a cure. Levi’s cognitive level is roughly at
the age of an 18-20 month old and I cannot bear to see this disease take any more of him than it already has. I’m doing this to give HIM a future
and a fulfilling life. I would greatly appreciate everyone’s support to give
me a hand by making a donation to support us in finding a cure to this disease that has taken so much from Levi! 💜
”When there is no light at the end of the tunnel, climb higher.”
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Levi's Life, Love & Laughter
TEE OFF FOR A CURE, golf charity outing event!